Hi John, what a PAIN that you have Fybro.................I have too, and it really does hurt, doesn't it. Am I right in thinking you have RA too? I have to take Amitrtriptyline too, (only a low dose at night to relax muscles,) and I try to exercise daily ( with 4 dogs , not doing this is not really an option!!), though we don't always do the marathon every day! I find I tire very easily, and need a snooze after anything remotely lively, like getting up, getting dressed, lifting a book etc.
My best way to deal with it is to go with it and try to accept that it DOES limit you; I think acceptance is almost as painful as the illness. Pacing yourself and coming to terms with the slow pace you have to take, GENTLE movements (maybe yoga, taichi?) and occasional swimming ( can't at the moment as other health issues prevail) also ease the tension and therefore the stress. Understanding how it does its evil work is also essential, as the more you know, the more you can find solace in the whys and wherefores.
I know its really hard, and I do hope you have good careful and considerate care from your rheumatologist; if not, then complain and don't let them mess you about. Oh and be careful that the so-called cures (rub the sore places with essence of stag beetle,; apply melted rats fat, that sort of thing!!) are right for you, I haven't found one that does....yet! Eat heathily and watch the weight, you know all that anyway!
Good luck, hoping your days get better very soon. Lxx
Always be aware that what you do might hurt others........and if it could, do nothing without careful consideration of the consequences
